When my world was first changed by uveitis, I had no idea what was coming. I didn’t understand what any of this meant. I knew I had some eye drops but never knew how many and how often. Here is a time line of what I have taken.
November 2018- eye drops for pink eye, then steroid drops four times a day and dilation drops once a day.
January 2019- steroid drops every hour and dilation drops twice a day. Naproxen 3 pills a day.
February 2019- steroid drops four times a day, dilation drops twice a day, drops so that my eyes don’t feel dry, methotrexate (4 pills to start and increasing once a week until we get to 10), folic acid once a day.
It’s a lot to keep track of. Some are painful. I HATE the dilation drops. They burn my eyes but we keep them in the refrigerator so that they cool a little bit. I put ice packs some times to help.
My doctor says that I might have to add more medicines to help with the side effects. I know it’s a lot but they tell me all this will help. Crossing my fingers!
A Girl Living With Uveitis 